Blog

#DIA2016: BBK on mHealth Past, Present and Future

By BBK on Fri, Jun 24, 2016

We are once again looking forward to an insightful week at DIA 2016 52nd Annual Meeting, which starts this Sunday in Philadelphia. With over 7,000 life sciences professionals from across all disciplines expected to attend, it’s always a week full of inspiring discussions on advancing research and development in science and health care.

Topics: mHealth, DIA

Improving Patient Engagement with mHealth (Part II)

By Aaron Fleishman on Thu, May 26, 2016

Four years ago, my colleague and management team member here at BBK Worldwide, Rob Laurens, wrote the blog post, “How a Poster Enrolled my Clinical Trial.” I re-read it recently and thought it would be fun to look back on this article to see how our ideas about patient engagement and enrollment may have changed over the last few years thanks to technology and the rise of mHealth.

Topics: Patient Engagement, Patient Centricity, mHealth, Mobile Strategies

What We’re Reading: HONY Raises Awareness (and Funds) to Fight Pediatric Cancer

By Juli Greenwood on Thu, May 19, 2016

If you follow Humans of New York (HONY) on Facebook – and with more than 17 million followers, I expect you do – then you’ve been inspired by and often heartsick over this week’s stories told from the Pediatrics Department of Memorial Sloan Kettering Cancer Center.

Topics: Pediatric Studies, clinical research, Patient

Patient Centricity and mHealth (Part I)

By Aaron Fleishman on Wed, May 18, 2016

At last, patient centricity is much more than an industry buzzword. We’re seeing real efforts to put patients at the center of clinical research, and it’s beginning to impact all areas across the clinical research continuum.

Topics: Patient Centricity, mHealth

Guest Spotlight: Improving Patient Engagement

By BBK on Thu, May 5, 2016

For this week’s Guest Blog Spotlight and in recognition of Clinical Trials Awareness Week, we’re sharing insights on improving patient engagement from Rare Genomics Institute and Rareshare.org, and contributors to our recent Rare Disease eBook. We asked Rare Genomics CEO Paul Schindler, Director of Strategic Alliances Nolin Huddleston, and Rareshare.org’s Head of Operations and Development Alice Cheng, “How can sponsors take a more active role in building and supporting rare disease communities?”

Topics: Patient Engagement, eBook, Rare Disease, Rare Disease Research

Guest Spotlight: Genetics and Discovery in Rare Disease Research

By BBK on Fri, Apr 29, 2016

“We know today that we can define the root cause of genetic diseases. We have a growing toolkit with which to we can aggressively tackle and modify the underlying defect, which ultimately I believe will lead to benefits for the patients, improving their quality of life, and potentially for some, it may lead to cures.”

Topics: eBook, Rare Disease, Rare Disease Research

Guest Spotlight: Appreciating Every Patient’s Experience

By BBK on Tue, Apr 26, 2016

“When so many rare disease patients commit themselves to becoming experts of their condition, sponsors must also strive to understand and collaborate with the patients they wish to engage.”


Topics: eBook, Rare Disease, Rare Disease Research

New eBook: Industry Insights on Rare Disease Research

By BBK on Tue, Apr 12, 2016



Our “Focus 5” eBook series, in which we share the insights of five thought leaders on a variety of industry topics and trends, has been incredibly well-received, and we’re pleased to issue the latest installment in the series on Rare Disease Research. Patient advocates, researchers and physicians from NORD, Xenon Pharmaceuticals, Landon Pediatric Foundation, Rare Genomics Institute and RareShare.org all weigh in on where we are today and what we can do to help advance research.

Topics: Patient Centricity, Rare Disease, clinical trials, Rare Disease Research

100% Talent: Closing the Wage Gap in Boston

By Bonnie A. Brescia on Thu, Mar 31, 2016

A city where women make on average .83 for every dollar earned by men, Boston is taking steps to close the wage gap through “100% Talent: The Boston Women’s Compact.” The compact is a voluntary pledge that more than 100 Metro Boston-based organizations have already signed, indicating their promise to close the gender wage gap in the workplace. Salary data will be collected and analyzed and companies will have access to research-driven tools and support to address pay gaps and inequities. Proudly, it’s also the first initiative of its kind in the country.

Topics: BBK Worldwide, Wage Gap, Wage Equality

Thoughts from Rare Disease Day: Moving Forward and Raising the Patient Voice

By David Kerner on Thu, Mar 17, 2016

A few weeks ago, we attended NORD’s 7th Annual Rare Disease Day in Boston. People impacted by rare diseases, including patients and patient advocates, industry thought leaders and legislators, gathered at the State House to help raise awareness of the impact rare diseases have on the lives of millions of people in the US and around the world.

Topics: Patient Centricity, Rare Disease, clinical trials

 

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