So much of the focus of clinical trial participation is on the patient and reducing site staff burden. But sometimes we forget about the role of the caregiver. After all, it is usually the caregiver driving the patient to their appointments, managing medication schedules, taking notes at doctor’s appointments, and much more. It makes you wonder: who is the caregiver’s caregiver? Enter Zaggo, a non-profit organization that provides the tools caregivers need to take care of their loved one as effectively and efficiently as possible.
Zaggo was born out of the experience of its founder and president, Roberta Carson, after she was thrust into the role of caregiver for her son Zachary during his 27-month battle with pediatric brain cancer.
“When you are dealing with someone who is very ill, you are so overwhelmed by the illness you can barely think straight, and it makes it almost impossible to manage everything. There are so many doctor’s appointments and tests, medications to keep track of, it’s just very overwhelming.”
Recently Zaggo was selected by BBK Worldwide to be a featured contributor to Clinical Notifier, an online resource designed to help patients and caregivers find pathways to better healthcare. In this episode of Pharma15 Live! our new correspondent Danielle Frate sat down with Roberta to discuss Zaggo, the role clinical trials played in her son’s care, and partnering on Clinical Notifier.For more information on Zaggo, you can go to www. zaggocare.org