What does patient data ownership actually mean? According to Craig Lipset, head of clinical innovation at Pfizer and DPharm 2018 co-chair, that is still an open question. Pharma15 Live! chatted with him about it at the DPharm 2018 conference.
“I see a lot of people talking about patient data access, as if that’s ownership. Access is as if somebody else owned my house but just let me in once in a while. That’s not ownership.”
He went on to discuss the “journey” companies should take with patients to give them true transparency about who sees their data and where it’s shared, and the need for the industry to define patient data ownership as a whole. Lipset also discussed whether the industry is behind the times when it comes to innovation, and the need to truly scale up innovations to be part of regular clinical research practice.
What does patient data ownership mean to you? Tell us in the comments!