A few weeks ago, I hosted a webinar on best practices for working with advocacy groups for patient recruitment. The webinar, Six Degrees of Kevin Bacon: Building and Maintaining Positive Relationships with Advocacy Groups, reviewed how when it comes to building an advocacy program for patient recruitment, it's not just about the one connection you have with one organization … it is about utilizing your network to connect, grow, and build several relationships at a local, national, and international level.
What happens in Vegas, stays in Vegas… Right? Well, not technically. Not in our case, anyway.
Earlier this month, I presented BBK’s approach to advocacy outreach and engagement for patient recruitment at the inaugural Patients as Partners conference in Philadelphia, Penn., hosted by The Conference Forum. Patients as Partners examined how we engage with patients across the entire clinical trial continuum, including early research, patient-centric protocol design, recruitment, retention, and communicating results with patients acting as ambassadors and educators. Following the conference, I had an opportunity to interview Valerie Bowling, executive director at The Conference Forum. Here is what she had to say…
I had the pleasure of hosting a webinar on best practices for working with advocacy groups. The presentation, Six Degrees of Kevin Bacon: Building and Maintaining Positive Relationships with Advocacy Groups, reviewed the importance of networking and connecting to build relationships with advocacy organizations for clinical trials. The approach to working with advocacy groups has changed. It is not just about the one connection you may have with one organization… It is about working with the condition community as a whole for one common goal. Before and after the presentation, I received several questions about working with advocacy groups. In this blog, I will share a few of those questions and insights.
As your study unfolds, you’re collecting millions of data points through a patient recruitment management system. Your study is probably generating more data than any member of any site staff has time to review. Assuming you’re asking the right questions, what then happens to all that actionable knowledge generated by your patient recruitment management system? What’s critical is that those reading the data are experienced with using metrics in the context of clinical studies. After all, clinical trial sponsors rely on them to turn raw data into thoughtful analysis and cost-effective recommendations.
Matchmaking Success for Global Clinical Trial Enrollment
As a patient recruitment company, it’s elementary (though not always obvious to the casual observer) that, with extremely few exceptions, we deal only with the hard-to-enroll studies. Further, it’s not out of the ordinary for us to tackle the (seemingly) impossible-to-enroll studies. So, rare diseases are not uncommon to us, being that they often fall into the latter category of recruit-ability. Indeed, BBK Worldwide (BBK) has had a great deal of experience with rare disease studies. And, if there’s such a thing as a therapeutic category that inspires us more than any other, it’s this one.
Years ago sponsors generally believed that site enrollment support simply involved developing generic outreach materials, mailing them out to each site and perhaps holding a brief training session on how to use the materials. It’s no wonder most studies failed to enroll on time. Today, most patient enrollment specialists, including BBK, define site enrollment support in terms of five broad areas of action.
Streaming radio adoption has been astronomical around the world. People tune in every day on their phones, tablets, and desktops (BBK even has its very own Spotify playlist!). This gives you the perfect opportunity to get your clinical study in front of the right people – straight to their earbuds! Oh... did we forget to mention how cost-effective it is?