BBK Worldwide® Blog

Decentralized Clinical Trials: The Patient Perspective – Part 2

Posted by Elizabeth Gargill on Thu, Sep 30, 2021

 

Getting Decentralized Right

What Matters to Patients

In Part 2 of our two-part interview with Phil Kelly, we delve further into the patient perspective on decentralized clinical trials. We ask Phil Kelly to share his thoughts on patient needs, tools, technologies, and the patient experience.

If you are conducting a decentralized clinical trial or planning for one, this is a must-see segment, with valuable insight to leverage for success.

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Topics: Patient, Pharma15 Live!, Most Viewed, Patient Voice, Patient Centric, Decentralized Clinical Trials, Phil Kelly

Decentralized Clinical Trials: The Patient Perspective – Part 1

Posted by Elizabeth Gargill on Tue, Sep 14, 2021

 

Getting Decentralized Right

What Matters to Patients

We know the industry is ready to embrace decentralized clinical trials. But what about patients? What do they think about decentralized clinical trials? What elements are important to them? And what should sponsors consider when designing such trials?

To dig deep, we spoke one-on-one with Phil Kelly, a bladder cancer patient and advocate. He shares his experience and insight in Part 1 of this two-part series on the patient perspective.

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Topics: Patient, Pharma15 Live!, Most Viewed, Patient Voice, Patient Centric, Decentralized Clinical Trials, Phil Kelly

New Partnership with Health Union Shines the Light on the Patient Voice

Posted by BBK Worldwide on Tue, Sep 10, 2019

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We recently had the opportunity to sit down with Lauren Lawhon, chief operating officer for Health Union, to discuss our newly formed partnership with the pioneer in online communities and how greater insight into the patient voice can enhance the clinical trial patient experience.

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Topics: Patient, Patient Experience, Study Voices, Health Union

Pharma15 Live! A Candid Conversation with a Clinical Trial Participant

Posted by Elizabeth Gargill on Tue, Apr 16, 2019

Season 2 Episode 2: As part of our Pharma15 Live! web series, we recently had the opportunity to sit down with three-time clinical trial participant Richard Brescia for a candid conversation about his experience – both positive and negative. As an industry, we can learn a tremendous amount by going directly to the heart of the matter and listening to the “patient voice.”

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Topics: Patient Engagement, Patient, Pharma15 Live!, Most Viewed, Matt Kibby, Richard Brescia

Guest Spotlight: Annie Finstein A Message to the Medical Community

Posted by Beth Davis Heppenstall on Tue, Feb 5, 2019

Rounding out our Study Voices panel for BBK's keynote “Do Engagement Tools Live Up to Their Hype?” is panelist, Annie Finstein. She is looking forward to sharing her experience as a patient and participant in a clinical research study on February 19 at the SCOPE conference. 

Annie was diagnosed with Crohn's disease in 2000 at nine years old. After trying all available medications approved for pediatric patients at that time, she participated in a pediatric study at Massachusetts General Hospital in Boston. Now in her late 20s, she enjoys spending time at the beach, hiking, cooking and gardening at her home in Boston. Annie is committed to making a difference and connects with other patients impacted by Crohn’s disease by running half marathons with Team Challenge, the Crohn's & Colitis Foundation’s endurance training and fundraising program.Annie_Finstein

What was most rewarding to you as a participant in a clinical research study?

It was most rewarding to know that I was helping advance the treatment of Crohn’s disease for pediatric patients, and that my participation might not only help me but also other kids suffering from inflammatory bowel disease (IBD).

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Topics: Patient Retention, Patient Recruitment, Patient Engagement, Patient Centricity, Patient Advocacy, Conferences, Clinical Trials, Patient, Patient Experience

Guest Spotlight: Gerald Dryden Site Feasibility and Protocol Design

Posted by Beth Davis Heppenstall on Fri, Feb 1, 2019

BBK’s signature Pharma15 Live! web series is coming to the 10th Annual SCOPE Summit for Clinical Ops Executives. On February 19, Bonnie A. Brescia, BBK’s founding principal, will moderate a panel during the conference’s plenary keynote program on the topic of “Do Engagement Tools Live Up to Their Hype?” 

We are pleased to introduce one of our panelists, Gerald Wayne Dryden, Jr., MD, PhD, MSPH, MSc of University of Louisville, Kentucky.

Dr. Gerald Dryden

Dr. Gerald “Tad” Dryden is Professor of Medicine and Director of the Inflammatory Bowel Disease Program in the Division of Gastroenterology at the University of Louisville in Louisville, KY.  He earned his MD at the University of Kentucky College of Medicine in Lexington, KY, and completed his internal medicine internship and residency at the Naval Medical Center in Portsmouth, VA. He then completed his gastroenterology fellowship at the Naval Medical Center in San Diego, CA.  During his tenure at the University of Louisville, he earned a Master of Science in Public Health, a Master of Science in Microbiology and Immunology, and a PhD in Microbiology and Immunology. Dr. Dryden’s research interests include developing new therapies from botanical sources and new medical devices to improve endoscopic care.

What is most rewarding to you as you consider your contribution to clinical trial research?

It is very rewarding when I am involved with a drug from the ground up -- seeing research patients benefit from the drug, then eventually being able to prescribe it to my clinic patients.

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Topics: Patient Retention, Patient Recruitment, Physician Referrals, Patient Engagement, Site Support, Patient, Patient Experience, Pharma15 Live!

What We’re Reading: HONY Raises Awareness (and Funds) to Fight Pediatric Cancer

Posted by Juli Greenwood on Thu, May 19, 2016

If you follow Humans of New York (HONY) on Facebook – and with more than 17 million followers, I expect you do – then you’ve been inspired by and often heartsick over this week’s stories told from the Pediatrics Department of Memorial Sloan Kettering Cancer Center.

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Topics: Pediatric Studies, Clinical Research, Patient