It’s been about a year since we released our first Focus 5 eBook on mHealth, and in that time much has changed in the digital health landscape. With a clearer understanding of the benefits, organizations are eager to integrate mobile health solutions to steamline patient care, and stengthen patient recruitment and engagement programs, while tech innovators continue to advance and refine these technologies for optimal clinical use. Now that mHealth has entered this next phase of adoption and development, it’s the perfect time to see where we are and where we still must go.
For this week’s Guest Blog Spotlight and in recognition of Clinical Trials Awareness Week, we’re sharing insights on improving patient engagement from Rare Genomics Institute and Rareshare.org, and contributors to our recent Rare Disease eBook. We asked Rare Genomics CEO Paul Schindler, Director of Strategic Alliances Nolin Huddleston, and Rareshare.org’s Head of Operations and Development Alice Cheng, “How can sponsors take a more active role in building and supporting rare disease communities?”
“We know today that we can define the root cause of genetic diseases. We have a growing toolkit with which to we can aggressively tackle and modify the underlying defect, which ultimately I believe will lead to benefits for the patients, improving their quality of life, and potentially for some, it may lead to cures.”
“When so many rare disease patients commit themselves to becoming experts of their condition, sponsors must also strive to understand and collaborate with the patients they wish to engage.”
We’re pleased to announce the availability of our latest eBook – mHealth: A New Era in Patient Engagement. One of today’s hottest industry buzz words, the idea behind the book was to cut through the hype and offer useful advice and practical considerations relating to mHealth as it affects those of us working in clinical trials.
Trials are getting increasingly more complex, and running studies globally is a business imperative – today more than ever. These complexities require a new set of methods and technologies to identify patients willing to engage in trials. We know from experience that those leveraging next-gen data management and deep analytics tools are succeeding in achieving their business objectives.
We’re pleased to announce the availability of our latest eBook: Are You Patient-Centric? Organizations with a patient-centric approach will outperform and maintain a competitive advantage over those who are solely focused on their bottom line. It’s really that simple. We know this to be true because it has been our experience for more than thirty years – and “The Patients to Find the Cure” is much more than our company’s tagline. Patients are at the center of everything we do.
And that’s why we couldn’t be more enthusiastic about the range of ways our industry is working to redefine itself around patient needs, wants, insights and knowledge.