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Guest Spotlight: Improving Patient Engagement

By BBK on Thu, May 5, 2016 | 3 min read

For this week’s Guest Blog Spotlight and in recognition of Clinical Trials Awareness Week, we’re sharing insights on improving patient engagement from Rare Genomics Institute and Rareshare.org, and contributors to our recent Rare Disease eBook. We asked Rare Genomics CEO Paul Schindler, Director of Strategic Alliances Nolin Huddleston, and Rareshare.org’s Head of Operations and Development Alice Cheng, “How can sponsors take a more active role in building and supporting rare disease communities?”

Topics: Patient Engagement, eBook, Rare Disease, Rare Disease Research

Guest Spotlight: Genetics and Discovery in Rare Disease Research

By BBK on Fri, Apr 29, 2016 | 2 min read

“We know today that we can define the root cause of genetic diseases. We have a growing toolkit with which to we can aggressively tackle and modify the underlying defect, which ultimately I believe will lead to benefits for the patients, improving their quality of life, and potentially for some, it may lead to cures.”

Topics: eBook, Rare Disease, Rare Disease Research

Guest Spotlight: Appreciating Every Patient’s Experience

By BBK on Tue, Apr 26, 2016 | 2 min read

“When so many rare disease patients commit themselves to becoming experts of their condition, sponsors must also strive to understand and collaborate with the patients they wish to engage.”


Topics: eBook, Rare Disease, Rare Disease Research

New eBook: Industry Insights on Rare Disease Research

By BBK on Tue, Apr 12, 2016 | 1 min read



Our “Focus 5” eBook series, in which we share the insights of five thought leaders on a variety of industry topics and trends, has been incredibly well-received, and we’re pleased to issue the latest installment in the series on Rare Disease Research. Patient advocates, researchers and physicians from NORD, Xenon Pharmaceuticals, Landon Pediatric Foundation, Rare Genomics Institute and RareShare.org all weigh in on where we are today and what we can do to help advance research.

Topics: Patient Centricity, Rare Disease, clinical trials, Rare Disease Research

100% Talent: Closing the Wage Gap in Boston

By Bonnie A. Brescia on Thu, Mar 31, 2016 | 2 min read

A city where women make on average .83 for every dollar earned by men, Boston is taking steps to close the wage gap through “100% Talent: The Boston Women’s Compact.” The compact is a voluntary pledge that more than 100 Metro Boston-based organizations have already signed, indicating their promise to close the gender wage gap in the workplace. Salary data will be collected and analyzed and companies will have access to research-driven tools and support to address pay gaps and inequities. Proudly, it’s also the first initiative of its kind in the country.

Topics: BBK Worldwide, Wage Gap, Wage Equality

Thoughts from Rare Disease Day: Moving Forward and Raising the Patient Voice

By David Kerner on Thu, Mar 17, 2016 | 2 min read

A few weeks ago, we attended NORD’s 7th Annual Rare Disease Day in Boston. People impacted by rare diseases, including patients and patient advocates, industry thought leaders and legislators, gathered at the State House to help raise awareness of the impact rare diseases have on the lives of millions of people in the US and around the world.

Topics: Patient Centricity, Rare Disease, clinical trials

Listen Now - Rare Disease 20/20: A Look at the Challenges and Opportunities in Rare Disease Clinical R&D

By BBK on Tue, Mar 15, 2016 | 1 min read



Late last month, BBK hosted the webinar Rare Disease 20/20: A Look at the Challenges and Opportunities in Rare Disease Clinical R&D giving our listeners the opportunity to gain insights from thought leaders in rare disease patient advocacy and orphan drug development.

Topics: Webinars, Patient Advocacy, Rare Disease

BBK To Attend SCOPE 2016 in Miami, Feb 23 - 25

By BBK on Mon, Feb 22, 2016 | 2 min read

BBK Worldwide is very excited to be participating in the Cambridge Health Institute’s 7th Annual SCOPE Summit for Clinical Ops Executives. Taking place February 23 – 25 in Miami FL, SCOPE will offer three days of in-depth discussions addressing the operational, technological and data-related aspects of clinical trial planning and management, with 12 different conferences, 4 pre-conference workshops and 2 symposia.

Topics: Physician Engagement, Site Engagement, global patient recruitment

BBK to Host Rare Disease Webinar, Feb 23

By BBK on Wed, Feb 10, 2016 | 3 min read

To raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients and their loved ones, the National Organization for Rare Disorders (NORD) established Rare Disease Day® in the U.S. almost seven years ago. Since then, people all over the world have come together to inform the public and engage with policy makers, researchers, health professionals and more, affecting positive change for all those impacted by rare diseases.

Topics: Webinars

Part II: South Korea's Vibrant mHealth Environment

By BBK on Thu, Dec 10, 2015 | 5 min read

It has become clear that you cannot discuss the future of global clinical research and its innovations without talking about South Korea. In our previous blog post, we delved into South Korea’s clinical research infrastructure, and found that it is among the best-equipped countries in the world for hosting clinical trials – with substantial governmental support, joint IRBs, and streamlined drug application and approval processes. In the second half of this series, we will discuss the prevalence of mobile health solutions in South Korea to determine what aspects of BBK’s mobile health initiatives resonate most with the population. 

 
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