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A Caregiver's Perspective on Rare Disease Clinical Trials

By Juli Greenwood on Thu, Apr 27, 2017 | 4 min read

Supporting rare disease research is a big part of our work here at BBK and rare disease recruitment is an expertise that our sponsors and CRO customers have come to expect from us.

While progress has been made to improve the lives of patients with rare disorders, there is much that still needs to be done to reach patients, further research, find new treatments and improve outcomes. Our most recent eBook, “Rare Disease Research. What’s Next?” is a collection of insights from a variety of rare disease stakeholders, including Roberta Carson, Founder and President of Zaggo, Inc. – a national nonprofit devoted to helping patients and families be more engaged members of their medical teams.

Topics: Most Viewed

What We’re Reading: Virtual Reality Gets Real

By Juli Greenwood on Thu, Jul 7, 2016 | 3 min read

You might remember the story from earlier this year about baby Teegan Lexcen. Born with just one lung and half a heart, and a defect so rare that doctors hadn’t come across it before, Teegan was sent home with hospice and not expected to live beyond a month or so. After a few months Teegan was still fighting and her parents sought a second opinion. Through some online research they found Dr. Redmond Burke, the chief of cardiovascular surgery at Nicklaus Children's Hospital in Miami, who agreed to help. Burke turned to Dr. Juan Carlos Muniz, a pediatric cardiologist who specializes in imaging, to make a 3-D model of Teegan's heart.

Topics: Virtual Reality, 3-D printing, AI

What We’re Reading: HONY Raises Awareness (and Funds) to Fight Pediatric Cancer

By Juli Greenwood on Thu, May 19, 2016 | 3 min read

If you follow Humans of New York (HONY) on Facebook – and with more than 17 million followers, I expect you do – then you’ve been inspired by and often heartsick over this week’s stories told from the Pediatrics Department of Memorial Sloan Kettering Cancer Center.

Topics: Pediatric Studies, clinical research, Patient

The EMV Liability Shift and its Impact on Patient Reimbursement

By Juli Greenwood on Tue, Sep 29, 2015 | 2 min read

October 1, 2015 marks an important milestone for anyone using or accepting cards in the United States. Known as the EMV liability shift (EMV is an acronym for Europay, MasterCard, Visa), it’s a deadline that’s fueling the replacement of magnetic stripe cards for more secure, globally accepted smart chip cards in the U.S. by shifting the liability for fraudulent transactions from financial institutions to the merchants that continue to accept them. So what does all this mean for global study patient reimbursement programs?

BBK Named a Top 100 Women-led Business in Massachusetts

By Juli Greenwood on Mon, Oct 27, 2014 | 1 min read

BBK and its co-founders Joan F. Bachenheimer and Bonnie A. Brescia joined other honorees at the Institute’s award breakfast Friday, October 24, including Boston Children’s Hospital president and CEO Sandra L. Fenwick, Commonwealth Medicine executive vice chancellor Joyce A. Murphy, Brigham and Women's Hospital president Dr. Elizabeth Nabel, and Atlas Travel president and CEO Elaine Osgood. (You can find the full list in the Globe Magazine’s Women and Power Issue, available at bostonglobe.com/magazine.) BBK was also one of 11 companies to be highlighted as a "Gold Star Innovator", for its innovation in 2013. 

Topics: Awards

 
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