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Thoughts from Rare Disease Day: Moving Forward and Raising the Patient Voice

By David Kerner on Thu, Mar 17, 2016 | 2 min read

A few weeks ago, we attended NORD’s 7th Annual Rare Disease Day in Boston. People impacted by rare diseases, including patients and patient advocates, industry thought leaders and legislators, gathered at the State House to help raise awareness of the impact rare diseases have on the lives of millions of people in the US and around the world.

Topics: Patient Centricity, Rare Disease, clinical trials

Enhancing the Patient's Clinical Trial Experience

By David Kerner on Fri, Jan 10, 2014 | 4 min read

A few years ago, I attended my brother's white coat ceremony for incoming medical students at the University of Medicine and Dentistry of New Jersey (UMDNJ), now Rutgers Medical School. The white coat ceremony contains much of the same pomp and circumstance of a college graduation; students march into a large white tent wearing their newly acquired white coats and are greeted by an array of family, friends, and faculty. The keynote speaker, the dean of students at the time, began her address by outlining the challenging, yet critical path that lay ahead. 

Topics: Patient Retention, Patient Advocacy, Technology

 
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