When patients find themselves interacting with information about their health and well-being, it is the responsibility of healthcare professionals to ensure that these interactions are as meaningful and productive as they can be. In this regard, the informed consent process is among the most important facets of clinical research currently undergoing a digital transformation, and pharmaceutical companies must continue to adopt eConsent across the board.
At this stage in the evolution of mHealth, how do we make it easier for sites and patients to stay engaged with a clinical trial? In this interview, BBK Worldwide’s Erica Mercado provides her insights on mHealth user experience optimization, adaptive engagement strategies, and mHealth’s integrated future.
It’s that time of the year again – we are getting ready for DIA 2017 53rd Annual Meeting, which starts June 18th in Chicago. With over 7,000 life sciences professionals from across all disciplines expected to attend, we look forward to engaging in insightful and inspiring discussions with leading innovators from the healthcare and clinical research industries.
Medication non-compliance is an epidemic that impacts patients, sponsors and the healthcare industry at large, costing the U.S. healthcare system around 300 billion dollars a year. According to a PM360 article that highlights medication compliance in diabetes patient populations, non-adherent patients have inpatient healthcare costs that are 41% higher than those of adherent patients.
Nearly a year ago, we released our first guide on rare disease clinical research. In it, we were looking to address some important questions facing the people who are committed to improving the lives of patients with rare disorders. While much progress has been made, it is critical that those of us in the health care and life sciences industry remain keenly aware of all that’s being done to further research and improve outcomes. In our latest eBook, “Focus 5: Rare Disease Research. What’s Next?” we reached out to industry experts for their insights on this evolving clinical research landscape.
Can you tell us what led you to start Zaggo and create the ZaggoCare System?
In 2005 my 17 year old son Zachary was diagnosed with a DIPG, a rare inoperable, malignant brain tumor, carrying a survival rate of less than 2%. My world crumbled when we learned Zach had 4-6 weeks to live. We are grateful Zach survived for 27 months, dying at 19.
My experience as Zach’s caregiver made me realize how difficult it is to navigate the medical world. It didn’t take me long to discover that the adage “You don’t know what you don’t know” is an unfortunate part of most medical journeys.
You’ve been committed to improving patient communications and engagement for a long time now. Can you tell us about your work and share your thoughts on what’s needed to bridge the most pressing patient communication challenges?
In 1989, we started an on-line “Medical Mall” in partnership with a non-profit Internet Service Provider Regional Alliance for Information Networking (RAIN) which ended up featured at the Smithsonian and early AOL conferences on health and technology. We have utilized various iterations of web page design over the years including “Ask-A-Doc”, RealVideo with embedded player, RSS health feeds, and blogs to look at asthma, obesity, COPD, developmental screening, cystic fibrosis, and public health issues. We were early adopters of live video-teleconferencing, embedded viewers, and continue with our YouTube channel GetMovingTV. We have provided patient material in English, Spanish, and Mixteco (which has no written language). We have placed downloadable apps related to asthma, obesity, and diabetes, linked in hip-hop songs about health, Twitter feeds around healthy food, and on-line and in classroom gamification, My Healthy World. We have entered technology and health partnerships with the Bill and Melinda Gates Foundation around International immunization, Aetna Foundation around obesity, Blue Cross Foundation around asthma, and the list goes on. Bottom line, there has been no health and technology “magic bullet” in all these initiatives.
Topics: Patient Engagement
Patient centricity has become an essential element of modern healthcare – in part thanks to the tenacity of patients and caregivers. They have advocated for a place at the table with sponsors and researchers in the drug development process, informing clinical and therapeutic research with much-needed patient voice and perspective.
Too often the word “innovation” conjures a negative response and is synonymous with big change and a total disruption. But innovation is really just the process of translating an idea into a product or service that brings value to a consumer willing to pay for it. It can and should be simple, in both the front and back end.
If you attended our recent webinar “Harnessing the Power of mHealth for New, Better Data and Improved Patient Engagement” you had the opportunity to submit a question to BBK President Matt Kibby or Roche Operational Intelligence Leader, Lewis Millen, during the webinar’s Q&A portion. We received so many great and thoughtful questions from our attendees, that we were, unfortunately, unable to address all of them. Today, we are happy to share Matt’s responses to many of those questions here, and we hope you find his answers useful.