Advocacy Outreach for Patient Recruitment

By Aaron Fleishman on Thu, Mar 13, 2014 | 4 min read

I had the pleasure of hosting a webinar on best practices for working with advocacy groups. The presentation, Six Degrees of Kevin Bacon: Building and Maintaining Positive Relationships with Advocacy Groups, reviewed the importance of networking and connecting to build relationships with advocacy organizations for clinical trials. The approach to working with advocacy groups has changed. It is not just about the one connection you may have with one organization… It is about working with the condition community as a whole for one common goal. Before and after the presentation, I received several questions about working with advocacy groups. In this blog, I will share a few of those questions and insights.

Topics: Patient Recruitment, Patient Advocacy, Social Media

Advocacy Engagement with Rare Disease United Foundation’s Patricia Weltin

By Aaron Fleishman on Tue, Feb 4, 2014 | 8 min read

I recently had the opportunity to chat with Patty Weltin from the Rare Disease United Foundation (RDUF). In our conversation, I learned more about the mission of her organization and the big impact she’s already making on the East Coast rare disease community after starting RDUF in 2011. I was so impressed by her commitment to the rare disease community that I wanted to share her story with our readers. In her interview with us, she tells us about RDUF, how she started, and an upcoming local event in Boston, Mass. Read on to hear more about the exciting things happening at RDUF.

Topics: Patient Advocacy

An Inside Look at SCOPE 2014 and a Twitter Chat

By Aaron Fleishman on Fri, Jan 17, 2014 | 6 min read

As conference season approaches, we're gearing up to hit the road running - with our first stop in Miami, Fla., at Cambridge Healthtech Institute's Summit for Clinicial Ops Executives (SCOPE). In an effort to get ourselves and our industry colleagues prepared (and excited!), we thought a Twitter chat with our friends from CHI's SCOPE would be a great way to kick off this exciting time! The Twitter chat is scheduled for Tuesday, 21 Jan at 12 p.m. ET. We'll be talking about using social media for clinical trials, pharma and advocacy groups, and exploring some of the latest new technologies for the clinical R & D industry. Follow #SCOPEchat on Tuesday to join the conversation.

Topics: Social Media, Conferences

mHealth for Patient Recruitment and Engagement in Clinical Trials

By Aaron Fleishman on Mon, Sep 16, 2013 | 4 min read

The U.S. Department of Health and Human Services defines mHealth as “the use of mobile and wireless devices to improve health outcomes, healthcare services, and health research.” At BBK, we call it a priority.

Topics: Patient Recruitment, Patient Engagement, mHealth

Part Two: Insights Into The DIA’s Patient Advocacy Program

By Aaron Fleishman on Thu, Sep 12, 2013 | 4 min read

This is the final installment of our interview with the Drug Information Association (DIA) about the their Patient Advocate Fellowship Program. To read part one of this two-part series, click here.

Topics: Patient Recruitment, Patient Advocacy, Conferences

Part One: Insights Into The DIA’s Patient Advocacy Program

By Aaron Fleishman on Mon, Sep 9, 2013 | 4 min read

At this year’s Annual Meeting of the Drug Information Association (DIA), my colleague Jackie and I had the pleasure of meeting with representatives from the DIA Patient Advocate Fellowship Program. The program was designed to strengthen patient collaborations with industry players and to raise awareness of patient groups. Now in its third year, the program has successfully “graduated” more than fifty Patient Fellows. Needless to say, Jackie and I felt compelled to reach out to the DIA for a special blog interview to learn more. Here’s what they had to say…

Topics: Patient Advocacy, Conferences

Three Tips for Using Social Media in Your Next Patient Recruitment Campaign

By Aaron Fleishman on Mon, Jul 15, 2013 | 3 min read

Here at BBK, we’re always musing over innovative ideas for using social media in patient recruitment. But we know this has been the Achilles’ heel of the pharma industry since the beginning of time, and we get it – industry players are discouraged by IRB / EC regulations and even more discouraged by what patients might say about their brand on social media networks.

Topics: Patient Recruitment, Social Media

Three Reasons to Implement a Social Media Listening Program

By Aaron Fleishman on Mon, Jul 1, 2013 | 2 min read

Social media listening programs observe and track social media activity, providing insights difficult to gather otherwise. When implemented in a patient recruitment campaign, these programs can gather information around a specific disease or condition, identifying active advocacy groups, common treatments, and challenges facing patients. But it goes even deeper than that, enabling you to implement the right strategies to speed your enrollment efforts.

Topics: Patient Recruitment, Social Media, Site Selection

Sneak Peek Into the 49th Annual Meeting of the Drug Information Association with Courtney Ingram

By Aaron Fleishman on Mon, Jun 17, 2013 | 3 min read

The 49th Annual Meeting of the Drug Information Association is right around the corner, and per usual, BBK likes to check in with the conference organizers to see what’s in store for the attendees this year. At last year’s conference, I had the pleasure of meeting Courtney Ingram, Manager DIA North America Marketing. A few days ago, Courtney and I had the chance to reconnect about this year’s conference. So, without further ado, here’s my conversation with Courtney Ingram...

Topics: Mobile Strategies, Conferences

Fostering Enduring Relationships Using Dynamic Mobile Apps

By Aaron Fleishman on Fri, May 10, 2013 | 3 min read

Collaboration Key to Advancing Clinical Trial Research

BBK Worldwide, a global leader in patient recruitment, has launched Health Info Gizmo (the Gizmo), a mobile vehicle used to inform, educate, and engage patient audiences about clinical trials, and in the process, foster long-term relationships between advocacy groups and the pharmaceutical industry. By leveraging the power of collaboration, the Gizmo provides clinical trial sponsors with opportunities to engage and partner with patient advocacy organizations to advance clinical research. “Advocacy groups are hesitant to assist in the promotion of clinical trials for fear that their involvement may smatter of endorsement of one company or therapeutic direction over another,” said Aaron B. Fleishman, leader of BBK’s social innovation group. “The interesting dilemma is that, more than ever, advocacy groups want to help their constituencies by encouraging awareness of clinical trials.”

Topics: mHealth, Patient Advocacy, Social Media, Mobile Strategies

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