mHealth is rapidly becoming much more than popular fitness and wellness apps – it's fueling new levels of patient engagement. Wearables have the potential to significantly help patients suffering from a multitude of health concerns and in turn, better inform physicians and share critical physiological data at a level never before achieved.
Accounting for more than $2.3 billion in major deals last year, mHealth remains one of the hottest trends in healthcare. With thousands of health and wellness apps on the market – from calorie counters to disease management apps that better connect the patient and physician, there are a few key tips we believe will best engage patients and ensure consistent usage over time.
Considering a social media campaign for your clinical trial? While there are proven advantages to using social media as a patient recruitment tactic, additional considerations must be explored when deciding if social media fits your campaign’s needs. First, scope out your audience by evaluating the opportunity with a social media listening program. For example, how active and engaged is this study community on social media? Or, how many Facebook groups, outlets, etc. are out there for these patients to find each other? Next, evaluate the outlet – What are all my options when building a social media page? Or, what outlets can I use if I just want to advertise?
A few weeks ago, and nearly five years after its open hearing on the topic, the Food and Drug Administration (FDA) finally released its proposed guidelines for how drug and device makers should navigate social media. Much has been written on the new guidelines including a few informative posts by Ed Silverman at the Wall Street Journal. As Silverman notes, among the 50 largest drug makers, half are still not using social media to engage consumers or patients, according to a survey by the IMS Institute for Health Informatics. He also suggests that the FDA will likely use the guidances as trial-and-error blueprints themselves as they run across questions that were not answered or situations that may not have been anticipated.
Social media and other digital platforms have become a popular tactic for clinical trial patient recruitment. It's taken our industry some time to get on board, but Rome wasn't built in a day, and slow and steady can, in fact, win the race. We've written plenty of blogs about social media for patient-centric recruitment, so now, I'm going to throw you a curveball and talk about new platforms for site engagement. From enrollment tips to keep your site staff engaged, to helping your sites build an online presence, these digital communications tools can help! Here are three outlets you should consider for site engagement.
A few weeks ago, I hosted a webinar on best practices for working with advocacy groups for patient recruitment. The webinar, Six Degrees of Kevin Bacon: Building and Maintaining Positive Relationships with Advocacy Groups, reviewed how when it comes to building an advocacy program for patient recruitment, it's not just about the one connection you have with one organization … it is about utilizing your network to connect, grow, and build several relationships at a local, national, and international level.
Earlier this month, I presented BBK’s approach to advocacy outreach and engagement for patient recruitment at the inaugural Patients as Partners conference in Philadelphia, Penn., hosted by The Conference Forum. Patients as Partners examined how we engage with patients across the entire clinical trial continuum, including early research, patient-centric protocol design, recruitment, retention, and communicating results with patients acting as ambassadors and educators. Following the conference, I had an opportunity to interview Valerie Bowling, executive director at The Conference Forum. Here is what she had to say…
I had the pleasure of hosting a webinar on best practices for working with advocacy groups. The presentation, Six Degrees of Kevin Bacon: Building and Maintaining Positive Relationships with Advocacy Groups, reviewed the importance of networking and connecting to build relationships with advocacy organizations for clinical trials. The approach to working with advocacy groups has changed. It is not just about the one connection you may have with one organization… It is about working with the condition community as a whole for one common goal. Before and after the presentation, I received several questions about working with advocacy groups. In this blog, I will share a few of those questions and insights.
I recently had the opportunity to chat with Patty Weltin from the Rare Disease United Foundation (RDUF). In our conversation, I learned more about the mission of her organization and the big impact she’s already making on the East Coast rare disease community after starting RDUF in 2011. I was so impressed by her commitment to the rare disease community that I wanted to share her story with our readers. In her interview with us, she tells us about RDUF, how she started, and an upcoming local event in Boston, Mass. Read on to hear more about the exciting things happening at RDUF.
Topics: Patient Advocacy
As conference season approaches, we're gearing up to hit the road running - with our first stop in Miami, Fla., at Cambridge Healthtech Institute's Summit for Clinicial Ops Executives (SCOPE). In an effort to get ourselves and our industry colleagues prepared (and excited!), we thought a Twitter chat with our friends from CHI's SCOPE would be a great way to kick off this exciting time! The Twitter chat is scheduled for Tuesday, 21 Jan at 12 p.m. ET. We'll be talking about using social media for clinical trials, pharma and advocacy groups, and exploring some of the latest new technologies for the clinical R & D industry. Follow #SCOPEchat on Tuesday to join the conversation.